Caroline Ram-Wolff, dermatologist in the dermatology department at Saint-Louis Hospital in Paris, medical coordinator of the GFELC Scientific Council, and member of the RHU SPRINT project, was recently a guest on the podcast RARE à l’écoute 🎤🧬, the first 100% rare disease-focused media outlet. In this third episode of the series dedicated to cutaneous T-cell lymphoma, she reviews the different management strategies for patients with mycosis fungoides.
© RARE à l’écoute
During the discussion, Caroline Ram-Wolff highlights the main treatment goals:
▪️ relieving symptoms, particularly itching and skin burning;
▪️ controlling disease progression, while noting that a definitive cure remains rare.
She also presents:
▪️ the various therapeutic options depending on the stage of the disease;
▪️ the frequency of follow-up required for patients;
▪️ the essential role of GFELC expert centers, which help confirm the diagnosis and guide patient management.
An insightful episode to better understand the therapeutic challenges of this rare disease.
🎧 Listen in French here: Managing mycosis fongoides
À lire aussi
Podcast – Rare disease – How can mycosis fungoides be diagnosed?
In the second episode of the podcast RARE à l’écoute 🎤🧬 — the first media outlet entirely dedicated to rare diseases — Nicolas Ortonne, pathologist, team leader at the IMRB – Institut Mondor de Recherche Biomédicale, and member of the RHU SPRINT consortium, shares his experience and discusses the challenges involved in diagnosing mycosis fungoides.
Podcast – Rare disease – What is a mycosis fongoïde?
Martine Bagot, a member of the RHU SPRINT consortium and Professor of Dermatology at Université Paris Cité, was recently featured on the podcast RARE à l’écoute. On this occasion, she discussed mycosis fungoides, the most common form of cutaneous lymphoma.
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